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Access to Benefits Options
Margaret-S
#1 Posted : Thursday, August 11, 2011 10:45:50 AM Quote
Rank: Newbie

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Joined: 1/3/2010
Posts: 1
I've had RA for just over 2 years. I work as an administrator in an office with a lot of PC work. For the first 12 months I managed to keep going full time then had to reduce to 3 days a week but I get so much discomfort from my hands, wrists and shoulders while working that I think I need to give it up all together for my own health and well being since I'm not too bad at all when I'm not working. Problem is I need some income. Has anyone "left" work on sick? What benefits are available to support you and how have people it when applying for them. I've worked for nearly 40 years so I;m no scrounger but it's all getting too much for me and is really getting me down. Help or advice from other members on how to approach this would really be appreciated. I do have access to a good GP and RA support team but there's only so much they can do for you.

On another matter while on holiday recently the bed was made of memory foam and this seemed better than a standard mattress for the aches anc pains. Anyone else come across this?
RichC
#2 Posted : Thursday, August 11, 2011 11:16:59 AM Quote
Rank: Advanced Member


Groups: Registered

Joined: 8/30/2010
Posts: 507
Location: Gravesend
Hi Margaret and welcome to the forum :0

Sorry to hear you are having issues with being able to work NRAS have some brilliant booklets available through the helpline , and the Two benefits ones have been updated recently...
PDF versions of them :

Benefits and RA

How to Claim Disability Benefits

Have a look at the publications list HERE as there are quite a few booklets that will be of use to you..espescailly the benefits ones ( above ) and the work related ones .

You can read them on-line or order them if you haven't already received them when you joined.

A lot of what you can claim depends on your family situation together with family income ... ie whether you are a lone parent , if you have a partner ..how much they earn . Whether you have a mortgage or rent etc.Whether you have non-dependants living with you.

Above all do not resign without getting qualified advice as this could complicate matters .

There is help out there financially dependent on your circumstances .
If your company do not know that you have RA , then definitely consider telling them , as they cannot be expected to make reasonable adjustments if they do not know . However the choice is yours.
Do you think you could remain in work with adaptations to your workplace or your work routine ? There could be help via Access to work , to help the company pay for adaptations etc.

Look at the DLA guide on the link above ...do you think you have any of the mobility or care needs ? If so ..apply for DLA as this does not affect any other income and you can claim whether you are working or not . It could also open up other avenues of help.

Hope this helps as an initial brief reply .

Memory foam .. i cannot answer unfortunately .

Rich :)
"The difference between 'involvement' and 'commitment' is like an eggs-and-ham breakfast: the chicken was 'involved' - the pig was 'committed'."
MrsWoman
#3 Posted : Thursday, August 11, 2011 12:36:08 PM Quote
Rank: Advanced Member


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Joined: 12/4/2009
Posts: 331
Location: South London
Hi Margaret

Answering on memory foam. I had a memory foam pillow and found it uncomfortable and stopped using it immediately as it really hurt my ear. My friend got a new bed with memory foam matteress and found it uncomfortable too. I would research on matteress and try them out before buying.

Cool
PS - Can you look to retrain or placed in post on phone advising/organising that doesnt have you inputting? Dont know how long you have got before retirement. thinking it easier to make moves like that with existing employer rather than trying to find work elsewhere with RA and recession.
jenni_b
#4 Posted : Thursday, August 11, 2011 12:44:19 PM Quote
Rank: Advanced Member


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Joined: 12/3/2009
Posts: 2,237
Location: nr Southampton
Hi

We have a memory foam bed (1/2 foam) and is comfortable BUT

1) It is too hot- even with the cooling cover.

2) I cant roll on it. Or get on and off without great difficulty.

We are going back to pocket sprung mattress next time.

NRAS have some good booklets on benefit and there is a benefit section of this forum.

Jenni x
how to be a velvet bulldoser
Rose-B
#5 Posted : Thursday, August 11, 2011 3:55:56 PM Quote
Rank: Advanced Member


Groups: Registered

Joined: 4/20/2010
Posts: 1,749
Location: Somerset


Hello and Welcome from me.

Mattress. We have had a memory foam mattress for near 2 years. Although it took us about 3 months
to get totally used to it. We LOVE it. The pillows do take a long time to get used to, I have 1, but
my Husband couldn't get used to it.


I was diagnosed in 2008 and was on long term sick 7 months + last year. I was a Manager in
Insurance but had to step down as I knew I was not going to be able to cope with long hours evening
and week end work. I now do 12 hours as a clerk in same office . However, my RA is not under
control having terrible troubles with TNF.

With regard to benefit I do not get anything as so far my Company has an Insurance policy
and they have made up my wage to 75% so very lucky. I do worry though that this may not continue

Good luck


Rose
Tracy-Street
#6 Posted : Thursday, August 11, 2011 5:01:44 PM Quote
Rank: Advanced Member


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Joined: 5/12/2011
Posts: 124
Location: Wilts, nr Stonehenge
Hello Margaret and welcome.

I bought a new bed a yr ago, with a memory foam mattress, best thing I have ever done. However, I couldn't get on with having mem foam pillows too, so have 2 shallow pillows.

Yes it is warmer than other mattresses, but I sleep with windows open, 2 fans on and a summer quilt, I sleep alone, so I only have myself to please.

Good luck with the benefits and giving up work research, keep us posted please

Trace xx
jeanb
#7 Posted : Thursday, August 11, 2011 6:24:31 PM Quote
Rank: Advanced Member


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Joined: 12/3/2009
Posts: 3,006
Location: Timperley
Hi Margaret - I too have a memory foam matress and it has been fantastic. I love it
Dorothy-W
#8 Posted : Friday, August 12, 2011 8:59:31 AM Quote
Rank: Advanced Member


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Joined: 9/13/2010
Posts: 786
Location: east anglia
Dorothy-W
#9 Posted : Friday, August 12, 2011 9:01:05 AM Quote
Rank: Advanced Member


Groups: Registered

Joined: 9/13/2010
Posts: 786
Location: east anglia
hi margaret, i have memory mattress and pillow my kids got me, both take a bit of getting used to but i like them, i live alone and i feel the heat anyway, fans are a god send and yes the mattress makes you hot but i changed my bedding as cant stand the weight worth a try,as for benefits i worked in a kitchen and had a great boss (chef/manager)he put loads in place for me when i told him about R.A,sadly he left when we were bought out by another company,the new chef/manager took them away and said that they were not needed which caused me great stress,i asked for an O/T station assesment and was refused,end result i got so bad i went on sick and finally left, i claim ESA work related and i get low DLA but check out what you would get, i also have a blue badge which is the best thing,(i am now having to reapply for my ESA so fingers crossed as last time ATOS made me go for an interview which was awfull), when i first applied i was really worried about income but the people i spoke to were wonderfull remember they deal with it all day .good luck,dorothy
Rose
#10 Posted : Saturday, August 13, 2011 4:30:23 PM Quote
Rank: Newbie

Groups: Registered

Joined: 5/28/2011
Posts: 2
Hi Margaret,
I get Access to Work, that allows me to use taxis to enable me to do my job, Access pay 50% with my employer paying 50%.
Access to Work also helps to assess what reasonable adjustments your employer can make to allow you to continue working, they help with cost.

I have had a memory phone matress for 10yrs, would not be without it. Cool
There are different kind of matresses, mine is high density viscose. There are many kinds of memory phone matressess on the market, with varying prices. I also know many people who have tried the pillows and never got used to them.
Me I have my V pillow, 2 normal pillows, 2 medium pillow and 2 small pillows.
As I can't bend my wrists, I use the small pillows, one squashed in each hand, I can then lean on my knuckles to get into bed. Ah genius!!

All the best Margaret Smile hope all goes well,
Rose
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